The Washington teen is one of 15 people in the U.S. who received the gene therapy surgery.
PORTLAND, Oregon — A Washington teen recognized snow falling for the first time after undergoing gene therapy in a clinical trial at Oregon Health & Science University (OHSU).
“I saw some of the big snowflakes!” exclaimed 16-year-old Aiden Moore-Van De Rostyne in a video her mom recorded back in January. “There’s a big snowflake in your hair,” said mom Eliza Van De Rostyne, followed by laughter from Aiden.
The magical moment was an unexpected sign of progress nearly a year after Aiden underwent a special surgery at
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